"For years I had always had a bad leg and if I fell, I
would have to crawl over to something so I could pull myself up. Once, I fell
crossing Dodge Street in Omaha. I couldn't get up so I had to crawl to the
sidewalk and pull myself up by the light pole."
Ehlers paused long enough
for the hearer to get a mental picture of this dignified woman crawling across a
city street on her hands and knees.
Smiling even wider, she continued,
"And the light pole was right in front of a bar."
The obvious conclusion
followed that she appeared to have over-indulged. Although Ehlers can tell the
incident with self-depreciating humor, her falling was a result of having had
polio in 1952. The effects of that disease have manifested themselves again,
long after her initial recovery.
Ehlers was a young woman, teaching at a
country school when polio struck.
"I hadn't been feeling well all week,
and on Friday afternoon, we went for a walk through somebody's pasture. All of a
sudden, I could hardly get up the hill to return to the school. It was not the
flu, it was polio. I never made the connection between falling and having had
polio because I never was paralyzed."
Post-Polio Syndrome symptoms affect
about 80 percent of those who have had polio. The original disease damaged motor
neurons, causing muscles to fail, necessitating the use of the braces, crutches
and iron lungs that were so prevalent among those who suffered from polio. In
later years, those same motor neurons can stop working entirely, again causing
paralysis, leaving the individual frustrated and confused about what is
happening to her/his body. Common sense and the "use it or lose it" mantra of
exercise therapy can make a post-polio patient begin a regimen of strengthening
exercises that are the worst possible cure for post polio syndrome.
Polio
survivors have been known to beat up their neurons to the point where they stop
working. And getting them back after that is a real struggle.
"I have
learned to conserve to preserve," Ehlers says.
Not all polio survivors
have Post-Polio Syndrome, and not all who have PPS have the same symptoms. Some
of the more common symptoms of Post-Polio Syndrome are:
* Extreme
Fatigue
* Night Pains
* Frequent Falls
* Difficulty
Swallowing
* Difficulty Breathing
"In 1995, I saw an article
written by Dr. Kip Burkman, director of rehabilitation services at Immanuel
Medical Center, about PPS and asked my doctor to make an appointment with him
for an evaluation. I was put through a series of physical tests in order to have
the diagnosis made. That's when I learned that you need to conserve your muscles
because you will continue to lose strength."
As former polio patients
age, the neurons damaged 50 years ago, become less effective. Exercises, other
than in a heated pool can further damage fragile neurons. Ehlers drove three
times a week to Immanuel Medical Center in Omaha for one year to exercise in
their heated pool before Fremont Area Medical Center made one available for
out-patient use.
"Fortunately, they have a pool maintenance group that
meets twice a week and is affordable for those who qualify for treatment. I am
so thankful for that. Before I knew I had PPS, I decided to enroll in an
exercise program at FAMC. I was losing strength and feared losing mobility. When
I went to enroll in this arthritis exercise program, I was told that arthritis
exercises are the worst possible regimen for PPS."
Anesthesia is a risk
to people who have had polio because of their increased sensitivity to the motor
relaxants commonly used during surgery. Post-polio patients have found that use
of these drugs can cause severe muscle pain after surgery or can result in
paralysis. Sleep apnea may worsen after anesthesia and patients may be at risk
for vomiting as anesthesia begins. Polio survivors contemplating surgery should
inform their anesthesiologist that they have had polio so that appropriate
precautions may be taken.
The most common triggers for the pain
associated with PPS are physical over-activity, exercise, cold exposure,
emotional stress, anxiety and type A behavior. The simplest way to prevent the
pain spasms is not to overdo, to stay warm and to relax. Many polio survivors
are back on breathing machines and in wheelchairs due to PPS. Those who once
defeated polio must be aware of the consequences of overuse of those muscles
affected by the disease. Ehlers attended a support group for polio
survivors.
"It was an eye-opener to see how this disease has affected
sufferers of polio. Some people even came on gurneys because this disease has
progressed to that stage. I feel blessed that my symptoms are not more
severe."
Ehlers paused, then smiled again.
"I was engaged to John
(Ehlers) when I had polio. I am so grateful that he is willing to do many
household tasks because I have little strength left in my hands," she grins
wider - "besides, he is a good cook."
For more information about Post
Polio Syndrome, contact Nebraska Polio Survivors Association, P. O. 45139,
Omaha, NE 68145-0139.